How can we support people with profound intellectual and multiple disabilities in enhancing their self-determination? A scoping review

BACKGROUND: Despite an increasing recognition of the capacity of people with profound intellectual and multiple disabilities to make decisions and act accordingly, parents and professionals lack a sufficient understanding of the concept of self-determination for people with significant disabilities. METHOD: A scoping review was conducted across several scientific databases using keywords related to profound intellectual and multiple disabilities and self-determination. RESULTS: Current representations of self-determination in people with profound intellectual and multiple disabilities focus primarily on the possibility of decision-making. Several strategies for documenting self-determined behaviours were identified, including direct observation and video recording. The results highlight various means of enhancing self-determination, such as the use of technology and life stories. CONCLUSION: People with profound intellectual and multiple disabilities can be self-determined when given the opportunity, supported by adaptations suited to their capacities, and participate in social environments that prioritise their needs.