Vie familiale et fratrie Archives - Page 5 sur 9

Sep 18

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Tacit knowledge in medical consultations for patients with profound intellectual and multiple disabilities: An exploratory qualitative study

By jbberthier

Sep 18

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Acute and Persistent Postoperative Functional Decline in Children with Severe Neurological Impairment: A Qualitative, Exploratory Study

By jbberthier

Sep 18

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Improving the clinician experience of caring for children with severe neurological impairment by meeting caregiver and family needs

By jbberthier

Sep 18

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Social support needs of caregivers rearing children with severe motor and intellectual disabilities at home in Japan

By jbberthier

Sep 18

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What is it like to be a twin of a person with profound intellectual and multiple disabilities?

By jbberthier

Sep 18

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Children With Severe Neurologic Impairment and Their Families in the PICU: A Secondary Qualitative Analysis to Assess Clinician-Family Collaboration and Mutuality

By jbberthier

Sep 18

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Increased risk of complications in lower versus upper limb peripheral intravenous cannulation in children with severe neurological impairment

By jbberthier

Sep 18

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A photo-narrative intervention protocol for clinicians and parents of children with severe neurological impairment in the PICU

By jbberthier

Sep 18

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Chronic Pancytopenia Due to Centrally Mediated Hypothermia in Two Children with Severe Neurological Impairment

By jbberthier

Sep 18

Love0

Family-centredness of professionals who support people with profound intellectual and multiple disabilities: Validation of the Dutch ‘Measure of Processes of Care for Service Providers’ (MPOC-SP-PIMD)

By jbberthier

Sep 18

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Navigating uncertainty: taking methodological cues from relatives and care professionals for researching the perspectives of people with profound intellectual and multiple disabilities

By jbberthier

Sep 18

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Relatives’ experiences of quality of healthcare services for adults with profound intellectual and multiple disabilities in Sweden

By jbberthier

Sep 18

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Quality of life and associated factors in siblings of children with severe motor and intellectual disabilities: A cross‐sectional study

Sep 18

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Caring for children with profound intellectual and multiple disabilities: images and metaphors expressed by Dutch parents

Sep 18

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An investigation of factors related to the use of respite care services for children with severe motor and intellectual disabilities (SMID) living at home in Japan

Sep 18

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Parents’ views on medical decisions related to life and death for their ageing child with profound intellectual and multiple disabilities: A qualitative study

Sep 18

Love0

Validation of the FACETS-OF-PPC as an Outcome Measure for Children with Severe Neurological Impairment and Their Families—A Multicenter Prospective Longitudinal Study

Sep 18

Love0

Following children with severe or profound intellectual and multiple disabilities and their mothers through a communication intervention: single-case mixed-methods findings

Sep 18

Love0

Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic

Sep 18

Love0

Tacit knowledge in medical consultations for patients with profound intellectual and multiple disabilities: An exploratory qualitative study

Acute and Persistent Postoperative Functional Decline in Children with Severe Neurological Impairment: A Qualitative, Exploratory Study

Improving the clinician experience of caring for children with severe neurological impairment by meeting caregiver and family needs

Social support needs of caregivers rearing children with severe motor and intellectual disabilities at home in Japan

What is it like to be a twin of a person with profound intellectual and multiple disabilities?

Children With Severe Neurologic Impairment and Their Families in the PICU: A Secondary Qualitative Analysis to Assess Clinician-Family Collaboration and Mutuality

Increased risk of complications in lower versus upper limb peripheral intravenous cannulation in children with severe neurological impairment

A photo-narrative intervention protocol for clinicians and parents of children with severe neurological impairment in the PICU

Chronic Pancytopenia Due to Centrally Mediated Hypothermia in Two Children with Severe Neurological Impairment

Family-centredness of professionals who support people with profound intellectual and multiple disabilities: Validation of the Dutch ‘Measure of Processes of Care for Service Providers’ (MPOC-SP-PIMD)

Navigating uncertainty: taking methodological cues from relatives and care professionals for researching the perspectives of people with profound intellectual and multiple disabilities

Relatives’ experiences of quality of healthcare services for adults with profound intellectual and multiple disabilities in Sweden

Quality of life and associated factors in siblings of children with severe motor and intellectual disabilities: A cross‐sectional study

Caring for children with profound intellectual and multiple disabilities: images and metaphors expressed by Dutch parents

An investigation of factors related to the use of respite care services for children with severe motor and intellectual disabilities (SMID) living at home in Japan

Parents’ views on medical decisions related to life and death for their ageing child with profound intellectual and multiple disabilities: A qualitative study

Validation of the FACETS-OF-PPC as an Outcome Measure for Children with Severe Neurological Impairment and Their Families—A Multicenter Prospective Longitudinal Study

Following children with severe or profound intellectual and multiple disabilities and their mothers through a communication intervention: single-case mixed-methods findings

Experiences of mothers of children with profound intellectual and multiple disabilities in the Czech Republic

Parent perspectives on the assessment of quality of life of their children with profound intellectual and multiple disabilities in the Netherlands

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